Real Skin and Thrush

I can see real skin... on my feet. It's amazing. It's pink, it's smooth, you can actually see veins thru it ;). I think the BCX-1777 is working! As it turns out I'm on the highest dose, which is 300 mg. a day (that's 3-100mg pills each).

Today at my dr.'s appt., Dr. Vu took a light and checked my eyes and my mouth. I said I don't ever remember that being part of my assessment. When she checked my mouth, she did a double take and had me stick out my tongue, lift up my tongue, stick it out again, lift it again and proclaimed "You have thrush!" Wow that explains a lot of things. Like why good things taste so weird. And maybe when I did my mystery shop (if you want to know more about mystery shops go here http://www.volition.com/mysteryUSA2.html and don't EVER pay for a list of mystery shopping companies) anyway, when I did my mystery shop the other night, I said the coke was flat. Maybe it wasn't??? Drats, I hope I didn't make an incorrect accusation! I can't believe I have thrush. When I asked Dr. Vu why??? Why??? She said in her sweet voice "Honey, you are autoimmune compromised." Oh yea. I forget sometimes because I feel better. But I'm not contagious! But it's still good to remember I still need to take care of myself!

I'm still itching pretty bad, badly, awful, a lot... what ever the correct English is. But since I'm seeing such good results I'm just hanging in there. [If you read my report about getting hit by a car and that I was somehow not itching... well I realized that I had not taken my BCX-1777 from Sunday morning until Tuesday afternoon. So this drug does make me itch more.] But I'm going to keep hanging on because I'm seeing results even if its just by the tips of my fingers... since I still don't have any nails.

I do have these funky hard cuticle kinda of gross things where nails go, but they are short. Oh, I found out it takes THREE years for your nails to grow back. So do I count from when I started getting treatment? 17 months ago? Or when I started getting something like nails back? 10, 9, 8 months ago? I don't know. I just would like to have a nail so I could pick up my tongue depressor (my scratcher for those of you who are new here) when I drop it on the ground, which I tend to do a lot. I have to step on it and kinda get the end to pop up to pick it up or use my keys, or a credit card or anything to get under it. One day I dropped it and tried for about a minute to pick it up and finally the guy behind reached down and handed it to me. Thank you. Sometimes when I ask people to help me and I comment I don't have any fingernails, they will say "Oh I don't have any fingernails, either" and I'll say NO I don't have ANY fingernails. I mean I don't, ok?? Only I hope I say it nicer than that!

I was told this week I was a little short with one of my co-workers. I felt awful! I'm so glad she told me because, just because I don't feel good is no excuse to be short or rude. So for those of you who know me, please if I act impatient with you please tell me! God's grace is abundant and I need to tap into His grace. It's there for me!

Well that is all I have to report. I see Dr. Duvic on Monday and she will make the true proclamation about my progress!

Oh, how could I forget!! I wore my red high heel shoes today and NO BAND-AIDs!!! Now if I would just quit scratching my feet and not open up any more craters!