When suffering does not destroy you, even though you have been to the edge of the abyss, you know something that you cannot know in any other way. Someone else is sustaining you. You are indeed living by a life not your own. Or as I love to say, "Your life is not about you." It is henceforth, most truly, about God. And you are merely "free sample" of what God has always been doing. - Quote from Richard Rohr

February 24, 2005

Did I ever really feel this way? A telling letter to my Primary Dr. And his nurse!

Looking back it's hard to believe I was ever this desperate. However, others tell me "Oh yea, Renee, you were that desperate".

Dear Dan and Bridgit,

I thought if I wrote you both, you would understand more fully what my phone call of Tuesday was all about.

If I sound frustrated, I am; terribly frustrated and I know it will be apparent in this letter. Bridgit when I was asking you to ask Dr. Rasor about tests, I was just throwing out some tests; like for leukemia or a body scan. I don't even know what a body scan is; the whole point for the tests is to discover if there IS SOME REASON WHY I KEEP ITCHING other than from psoriasis.

My itching is not getting ANY BETTER. In fact it seems the better my skin gets, the worse the itching. Here is my typical day. I have to take 1-2 Atarax (hydro whatever) every 3 hours or I feel like my skin is horribly sunburned. The Atarax only helps w/that feeling of being burned, and calms me down a little. I am NEVER ONE MOMENT FREE OF ITCHING. There is some place, some where, ALWAYS that is begging to be scratched. Then we have days like today where I pour on so much lotion I'm swimming in it and I'm so dry right at this moment I can barely type. Ok, that's an exaggeration but you get the idea.

Even though I take lots of drugs at night, my husband has had to get up every night this past week and sleep somewhere else because I'm tossing and turning. I find my self waking up in the middle of the night scratching. Though the sleeping pills are helping me somewhat, making me feel like I've slept a little, I wonder if I am getting any sleep??? I'm pretty irritable when I'm awake ;). BTW, Dan, those other sleeping pills you gave after Ambian, didn't work at all, so I'm back to using the Ambian (sp?)again.

So here are some things I'm thinking. What other avenues can we look at for my itching. My skin is looking great, the psoriasis is almost all gone. So why do I continue to itch? I understand there is some kind of saliva test you take or what about this (just found it on the internet): abnormally dry skin, sometimes called xerosis can cause itching. Can we test for that?

Here are some other things from this website: (http://health.discovery.com/encyclopedias/3074.html)

skin infections, such as scabies· body wide infections such as chicken pox· cancer or tumors, such as certain blood cancers known as lymphoma (oh if I had only known then what I know now!!!), multiplmylenomama, and polycythemia vera. Other tumors, such as a skin cancer called melanoma, stomach cancer or a carcinoid tumor, can also cause itching. Conditions with body-wide effects, such as chronic renal failure, certain liver conditions, such as cholestasis of pregnancy, or iron-deficiency anemia · autoimmune disorders, conditions in which a person's immune system attacks his or her own body. Examples include Sjogren's syndrome and multiple sclerosis. · hormone imbalances such as those that occur in diabetes. Low thyroid hormone levels called hypothyroidism and high thyroid hormone levels, known as hyperthyroidism, both can cause itching as well. psychological causes (well that made sense... I did feel like a nutcase!). These may include anxiety, psychosis or cocaine withdrawal.

Have we/can we checked my thyroid?

I'm just desperate. I'm about to go out of my mind, and I need to know that we are doing everything we can to seek out what is causing this.

Dr. Fox did mention we should give the light treatments at least a month. I'm willing to do that. But I'm very close to going for a month.

Also (I know I'm rambling) like today is just awful because it's cold and dry outside. However, this weekend when it was warmer or earlier this week when the heater wasn't going full blast, it was still bad, frankly that scared me because I've been thinking it's the cold dry air of winter and if only I can make it to the summer. But who knows?

So, I'd like you to consider other tests that rule out anything, ANYTHING, I don't care what it is. I just need to know that this itching is just my bane in life... a result of my psoriasis and not something else.

Make sense?

Thanks,


P.S. I didn't even mention the almost $2200 in office visits and meds since September 1, 2004 and all the time from work I've had to take.

February 06, 2005

The True Scratch that Satisfies

I spend my entire day looking for ways to scratch. You wouldn't believe the items I've found that can temporarily relieve my itching.

Brake pedals are great. While at a stop sign, place the souls of your feet on either corner of the pedal and scratch away.
Pill Bottles make good scratches. The bottom of them.
You know those foot rests found under desks? Turn it over and you have a variety of surfaces to scratch with.
Tongue Depressors work well and you can be discreet when scratching your back.
Credit cards, my ASH state badge, any plastic piece is great for scrapping off dead skin and relieves the itch... temporarily.
Our conference room at work has a great edge on one of the legs, but when I start rubbing my feet on it, it's a little, how do we say?, disconcerting to have all your co-workers turn and eye you.
Pens, letter openers, knives (the ones at fancy restaurants work best because they are heavier and longer), brushes, I've tried them all.
Does it do any good? Only when I'm scratching. As soon as I stop, then the itch comes back and sometimes, pain depending on what I grabbed!

It seems to me someone very wise once said:
But seek first his kingdom and his righteousness, and all these things will be given to you as well.
Or I like how The Message puts it...
33 Steep your life in God-reality, God-initiative, God-provisions. Don't worry about missing out. You'll find all your everyday human concerns will be met.

So, do you think maybe, just maybe, if I spent as much time seeking the Kingdom of God as I do seeking something to scratch with, my true itch would truly be satisfied?